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HomeMy WebLinkAboutMINUTES - 07121994 - H.3 H.3 THE BOARD OF SUPERVISORS OF CONTRA COSTA COUNTY, CALIFORNIA Adopted this Order on .July 12, 1994 , by the following vote: AYES: Supervisors Smith, Bishop, DeSaulnier, Torlakson and Powers NOES: None ABSENT: None ABSTAIN: None ----------------=------------------------------------------------------------- ------------------------------------------------------------------------------ SUBJECT: Mental Health Commission 1993-1994 Annual Report The members of the Mental Health Commission appeared and orally reviewed their . 1993-1994 Annual Report which included a follow up of the Ad Hoc Plan Recommendations, the planning efforts for the Children's Plan, and their goal for services for older adults and linkages between the children's, adult and older adult plans to establish a continuity of care as part of the planning, priority to community-based housing, and to effectively fulfill their Commission responsibilities. The Commission advised that it had developed a Mission Statement, as follows: The Mental Health Commission has a dual mission: First, to ensure that the County's mental health system delivers quality services which are effective, efficient, culturally relevant and responsible to the needs and desires of the clients it serves; and, second, to advocate with the Board of Supervisors, the Mental Health Division and the community on behalf of all Contra Costa County residents with mental disabilities. Board members expressed their appreciation to the members of the Mental Health Commission; ACCEPTED the 1993-1994 Annual Report of the Mental Health Commission; REFERRED the report to the Finance Committee to work with the Commission to find a way to accomplish the recommendations in the report and to facilitate public education relative to Mental Health, including the use of the community access television channel; and AUTHORIZED a letter to the cities informing them of the availability of the report. 1 Hereby certlty that this is a true and correct copy of an action taken and entered on the minutes of the Board of Sui!=the date shown.� ATTESTED: PHIL BAT LOR fork oft the Board of Supero and County Administrator cc: Finance Committee . County Administrator Mental Health Director se L CONTRA COSTA COUNTY . = MENTAL HEALTH COMMISSION 595 CENTER AVENUE,SUITE 200 n� MARTINEZ,CALIFORNIA 94553-4639 o. G!iuu'+A Z Phone(510)313-6414 �OST4 COUNT MISSION STATEMENT of the Contra Costa County Mental Health Commission INTRODUCTION: The State of California has mandated the development of Mental Health Commissions in each County so that consumers,family members and other citizens gill have ars. opportunity to be involved and influential in the planning and implementation of the public mental health services delivery system. MISSION: The Mental Health Commission has a dual mission: First, to ensure that the County's mental health system delivers quality services which are effective, efficient, culturally relevant and responsive to the needs and desires of the clients it serves; and, second, to advocate with the Board of Supervisors, the Mental Health Division and the community on behalf of all Contra Costa County residents with mental disabilities. ACT IV IT IES: To this end, the Contra Costa County Mental Health Commission gill review and assess the County's mental health services system,report on the performance of the mental health system to the Board of Supervisors, provide a forum for public input regarding the concerns and needs of persons with mental disabilities, participate in relevant planning activities,and advocate for appropriate and needed services and the rights of persons with disabilities. - Adopted by the Mental Health Commission Jaw.x%ry 25,1994 sEa� CONTRA COSTA COUNTY MENTAL HEALTl COMMISSION 595 CENTER AVENUE,SUITE 200 MARTINEZ,CALIFORNIA 94553-4639 Phone(510)313-6414 6¢ 'VN TO: Board of Supervisors FROM: Mental Health Commission DATE: July 5, 1994 Attachments to be made part of the report of the Commission to the Board of Supervisors on Tuesday, July 12, at 11 am: Information on the Commission: *Roster of Commission membership *Commission Mission Statement *Commission Goal Statement Follow-up on Ad hoc Plan prepared by the Commission one year ago: *Summary of the Ad hoc Plan for adult services, June, 1993 *Progress Report from Mental Health Director describing actions in response To Plan recommendations Housing Report of the Mental Health Commission, June, 1994 A351 (6/93) Health Services Department sE-� c MENTAL HEALTH DIVISION i 595 Center Ave.,Suite 200 ice _ ,• Martinez,CA 94553 M' _ Director (510) 313-6411 Medical Director (510)313-6415 Operations Manager (510) 313-6418 �o.� =_ .•i✓4~ Ethnic Services (510)313-6413 srA cotIT Adult Program Chief (510) 313-6419 Children Program Chief (510) 313-6408 May 19, 1994 To : Mental Health -C7 Cmission � � I From: Lorna Bastin -� Mental HealtH Director Subj : Progress Report I have prepared the following report on the changes the Mental Health Division has made since the Ad Hoc Planning Committee report was presented to the Board of Supervisors in June 1993 . As the new Mental Health Director, the Ad"Hoc Planning Committee Report, an up-to-date overview .and evaluation of the adult mental health system from the perspective of the various stakeholders , was of considerable value to me. I have noted many times that the report will provide a good starting point for a comprehensive reevaluation of our services . A full-scale System of Care/Managed Care planning process is just now getting underway with the arrival of Alan Stein, our new Director of Planning and Management Support . We have addressed changes or progress in the mental health system in the following general recommendation areas of the Ad Hoc report : 1) Decrease reliance on State Hospital and IMD beds; 2) Identify strategies to reduce the utilization and length of stay on I & J Wards at Merrithew Memorial Hospital; 3) Expand crisis intervention capabilities; 4) Involve consumers, at all levels of the system, in developing their treatment plans, evaluating services, working as staff and serving as members of boards or committees; 5) Enhance and strengthen the case management system; 6) Evaluate all current clinic services and day treatment in light of the possibilities offered by the Rehab Option and other funding sources . A-371 (9/91) Contra Costa County Mental Health Commission Progress Report Page 2 1) DECREASE RELIANCE ON STATE HOSPITAL & IMD BEDS • Number of State Hospital beds decreased from 71 39 . • Housing consultant under contract to provide advice on supported housing programs, to identify outside funding sources for transitional and permanent housing and to develop a strategy for increasing the number of board and care facilities . • RFP sent out 5/16/94 for augmented board and care with community support . • Addition of one 10-bed augmented board and care home . • Contract with Telecare Corporation to utilize 10 beds at their three sub-acute, locked treatment facilities . • Bed Review Committee meets .weekly to review clients appropriate for movement to a lower level of care. • A Clinical Nurse Specialist has been reassigned to monitor patient care for Contra Costa County residents at the Crestwood facilities, Westwood, Highview, the Telecare facilities and Napa State Hospital . • Have applied, via Housing Authority, for 30 Section 8 vouchers with Division commitment to hire 3 part-time consumer employees to provide support to voucher recipients. • RFP being developed for a 10-bed residential treatment facility with an average length of stay of 12 months . This facility will be an alternative to acute psychiatric hospitalizations and IMDs. 2) IDENTIFY STRATEGIES TO REDUCE THE UTILIZATION AND LENGTH OF STAY ON I & J WARDS AT MERRITHEW MEMORIAL HOSPITAL • Bay area counties contract with Guardian Corporation for a Neurobehavioral Program at Highview (in Alameda County) for organic brain syndrome (OBS) clients . Contra Costa County has 13 beds in that facility. • The Ad Hoc Planning Report referenced FY 92/93 average length of stay as 22 (V and 31 (J) . FY 93/94 average length of stay, through March, were : 21 (1) and 22 (J) . Mental Health Commission Progress Report Page 3 • Weekly Bed Review Committee regularly considers clients located on Inpatient Wards . • Consideration being given for future uses of Napa State Hospital facilities for dual diagnosis and other populations . 3) EXPAND CRISIS INTERVENTION CAPABILITIES • Consolidated management of Crisis Services in both Central and West County. • Insufficient space and additional staff costs preclude development of an East County Crisis Unit at this time . This will be reconsidered if the Pittsburg Medical . Clinic moves to Los Medanos . The East County Outpatient Clinic does crisis intervention on a drop-in basis . However, they do not receive 5150 ' s . • The concept of providing mobile crisis services will be looked at more closely as part of the System of Care/Managed Care Planning process . • Admissions to Nierika House are now coordinated through Merrithew Memorial Hospital E Ward to ensure these services are utilized by the target population. • The concept to develop a pilot that adapts the ISA concepts will be considered in the System of Care/Managed Care Planning process . 4) INVOLVE CONSUMERS AT ALL LEVELS • Four consumers were recently selected as Mental Health Community Support Workers . These are permanent, full- benefitted County positions . • Two additional consumer employees will be hired July 1, 1994 to provide supportive services to H. I . P. housing programs . • Consumers and family members were involved in designing the implementation plan for Coordinated Services . Mental Health Commission Progress Report Page 4 • Approved a proposal by Mental Health Consumer Concerns to develop a self-help center. Coordinated Services implemented in April 1994 . Providers, clients and family members were active participants in designing the process to implement the new system. 5) ENHANCE AND STRENGTHEN CASE MANAGEMENT SYSTEM • Reassignment of staff increasing number of case managers from 9 to 15 during the past year. • Four consumer Mental Health Community Support Workers have been hired to assist case management effort . • A volunteer program under development that will incorporate consumers throughout the mental health division. • one of the major objectives of Coordinated Services is to make the mental health system more responsive to the changing needs of individuals by improving coordination of services and establishing a single point of coordination for each person receiving services . Implementation of Coordinated Services has resulted in a strengthening of the case management system. • Linkages between case managers and the Conservatorship Unit have improved. Not only do conservators participate in the weekly Bed Review Committee, bi- monthly meetings are held between the Mental Health Director and Conservatorship staff to improve communications . • Conservators participate as members of the coordination teams, thereby improving coordination between case managers and conservators . 6) EVALUATE ALL CURRENT CLINIC SERVICES AND DAY TREATMENT IN LIGHT OF THE POSSIBILITIES OFFERED BY THE REHAB OPTION AND OTHER FUNDING SOURCES • Contract and County day treatment providers are now meeting monthly to explore revenue enhancement via Medicare billing. Providers are also looking at programmatic issues around day treatment and looking at future system directions in terms of the needs of the client population. October 26, 1993 _ MENTAL HEALTH COMMISSION GOALS 1993-1994 FOLLOW-IIP ON AD HOC PLAN RECOMMENDATIONS 1. Actively follow-up with the Mental Health Division to ensure that progress is being made in implementing the Ad Hoc Plan recommendations. (Mental Health Commission and designated representatives) 2. Participate in the Mental Health Division's planning to create a more consumer-centered system. (Mental Health Commission and designated representatives) 3 . Regularly secure and review information on the Mental Health Division's implementation of Performance Outcome Measures. (Mental Health Commission) 4 . Report to the Board of Supervisors on the Ad Hoc Plan recommendations which have been implemented and those yet to be implemented. (Mental Health Commission and designated representatives) COMPLETE THE PLANNING EFFORT 5. Complete the Children's Plan. (Suzanne Strisower and the Children's Committee) 6 . Develop Mental Health Commission goal(s) regarding services for older adults. (Marie Goodman) 7. Plan linkages between the children's, adult, and older adult to establish a continuity of care as part of the planning. GIVE PRIORITY TO COMMUNITY-BASED HOUSING 8 . Advocate for the maintenance of currently funded housing resources. (Joan Sorisio and Adult Committee) 9. Building on the Ad Hoc Plan and prior housing plans, develop a detailed 1993-94 Housing Plan which spells out a range of housing options and a targeted number of units to meet the array of housing needs. (Joan Sorisio and Adult Committee) 10. Propose and advocate for an organizational mechanism for accomplishing the housing goals. (Joan Sorisio and Adult Committee) EFFECTIVELY FULFILL MENTAL HEALTH COMMISSION RESPONSIBILITIES 11. Develop a mission statement pertaining specifically to Contra Costa County Mental Health Commission. (Mini Ad Hoc Committee) 12. Perform the duties specified in AB 14. (Mental Health Commission) Mental Health Commission Goals October 26, 1993 Page 2 KEEP CURRENT ON RELEVANT INFORMATION 13 . Revisit AB 904 and develop a summary. (Wayne Simpson and Jay Mahler) 14. Keep abreast of Federal/State/Local mandates, changes, developments, etc. (Mental Health Commission) 15. Review the County's budget and policies and advocate for Mental Health services throughout the budgeting process. (Mental Health Commission) EXECUTIVE SUMMARY OF THE AD HOC PLANNING COMMITTEE REPORT Approved by the Mental Health Commission, 6/24/93 INTRODUCTION: The Ad Hoc Planning Committee of the Contra Costa County Mental Health Advisory Board was formed in early 1993 to provide a vehicle through which a broad array of mental health constituencies could provide input into planning and developing the County's mental health services. The full report details the Committee's guiding philosophy, a description of the County's mental health services for adults*, and extensive recommendations. MAJOR FINDINGS: As a consequence of limited and shrinking resources, the County has restricted the potential service population to those with the most severe impairment and reduced community- based services geared to prevention,early intervention and support. This-has produced a disproportionate reliance on costly, restrictive institution-based programs and increasingly heavy usage of acute hospital and crisis services. The projected distribution of expenditures is graphically shown below. PROJECTED COST OF ADULT PROGRAMS FOR FY 92-93 BY PROGRAM TYPE Total Costs ` Net County Costs Crisis Community Crisis Community 1394 Based 13% Based 28% Ifetrithew 2494 Mcnithcw 15% 26% 1MDs IHDs r. State Hospitals 10% a State Hospitals 13% 23% ?c PROGRAMS TOTAL COST COUNTY COST COMMUNITY BASED SERVICES (County and contractors)including: Client advocacy/self-help,Case Management,Supported Housing, Day Treatment/Socialization, Vocational and Employment, Medication Management,Outpatient Psychotherapy,Board and Care Supplement,Homeless Services,Residential Treatment, Forensic and Monolingual/Bilingual Services. .............................$9,046,645 $5,108,562 INSTITUTES FOR MENTAL DISEASE(DADS)[73 beds] .............................$3.265,479 $2,727,335 STATE HOSPITALS [72 beds] ..........................................................................57,226,900 $7,226,900 MERRITHEW HOSPITAL(I&J WARDS) [35 licensed beds].............................$8,225,145 $3,069,763 CRISIS SERVICES,'including E Ward,Nierika,West County Crisis,and............$4,030,807 $2,735,592 Crisis&Suicide Intervention "Due to time constraints and the fact that adult services receive nearly 80%of allocated mental health funds, the Committee elected to focus on this age group. We hope that future planning efforts will address children's and geriatric programs and follow-up on adult issues not fully covered in this report EXECUTIVE SUMMARY We find the system spending most of its meager resources to care for a relatively small--- . number of patients in institutions,a form of care that is the least desirable as well as the most costly. A decade of experience,bolstered by solid research, has shown that individuals with serious and persistent mental disabilities as well as frequent users of mental health acute and crisis services,can make successful adjustments to community living IF they are given adequate supports. BASIC APPROACH: Given the current National, State and County fiscal and political realities, the only viable option is to radically reconfigure existing resources to change the system. These changes must be accompanied by a corresponding political shift, as stated in the AB904 Master Plan, that empowers clients, focuses on their strengths and encourages them to live full, productive lives in the community. The direction proposed in this report-- MEASURED MOVEMENT AWAY FROM INSTITUTIONAL CARE AND TOWARD A COMMUNITY SUPPORT SERVICES SYSTEM -- is fully consistent with National, State and County philosophy and trends. It holds the promise of providing better services to more people in need at less cost to the County. In order to accomplish this goal: -Mental Health Services must share equal status, priority and financial support with medical services. -Dollars saved from the reduction of state hospital and IMD beds must be designated for local community mental health services in order to avoid repeating the historical deinstitutionalization disaster. •A case management system (individual or team) must be proactive in securing, arranging and/or providing needed services and supports as clients transition to the community. -Clients must be involved in all decisions affecting their lives. •A full range of appropriate housing options with sufficient supports from case managers and other services must be available within the community. -Pilot programs -- including proven models like Integrated Services Agency and Mobile Crisis -- must be implemented as a means of exploring the options for reconfiguring the system. These components will make it possible to develop a system,which is cost effective, client centered and community based. RECOMMENDATION HIGHLIGHTS: Decrease the reliance on State Hospital and IMD beds: Work closely with residents to determine their preferences and needs and to prepare them for returning to the community. Identify and develop a full range of alternative placements in the community. ii Strive to upgrade the services provided in State Hospitals and IMDs for the benefit of those who will require these services until sufficient and adequate alternatives are available. Identify strategies to reduce the utilization and length of stay on I and J wards in Merrithew Hospital: Enhance the system's ability to provide needed supports before the clients' problems escalate to the acute stage. Work with other counties to develop specialized facilities for populations that are not appropriately served by acute inpatient services. Increase efforts to divert patients to other programs and hospitals. Begin discharge planning, in cooperation with the patient's case manager, as soon as possible. Strive to preserve the client's living situation and ties to the community during hospital stays. Expand crisis intervention capability: Increase crisis residential resources. Develop a mobile crisis service pilot program. Retain the West County Crisis Service and pilot a crisis walk-in service in East County. Develop a system for sharing Crisis and Suicide Intervention's computerized data base on community resources. Consider integrating all crisis services under one administration. Involve consumers,at all levels of the system,in developing their treatment plans, evaluating services, working as staff and serving as members of boards and committees: Contract with a consumer group to conduct a survey of State Hospital and IMD clients and assist in transitions to the community. Develop an action plan to implement a client-centered service delivery system and train all staff in client-centered methods. Implement the Coordinated Services System. Support the development of a consumer-run self-help center. Develop a pilot project that adapts the Integrated Service Agency/AB 3777 program to Contra Costa County and include the components necessary to focus on client needs,choices and wants. iii EXECUTIVE SUMMARY Enhance and strengthen the case management system: Recognize case management as a therapeutic modality and the case manager as the advocate and facilitator of the provision of community-based treatment. Assure system-wide knowledge of expectations and capabilities of case management services. Limit case loads to a size that enables staff to meet client needs by increasing existing case management services. Augment the case management system to include consumers, contractors and families. Provide case management priority access to (and exit from)services needed by their clients. Evaluate all current clinic services and day treatment in light of the possibilities offered by the Rehabilitation Option and other funding sources: Provide supports necessary to enable clients to remain in their own homes, using 24-hour services only when a person needs a more structured situation. Assign staff to coordinate and advocate for housing and for vocational and employment services. �.. ']Keep funds saved from reducing hospital, IMD,and local inpatient services available for the maintenance and development of community services--for ALL AGE GROUPS -- to the fullest extent possible. Develop an integrated system to identify and monitor potential grants and to coordinate grant-writing and other activities to generate additional revenues. FOLLOW-UP: The Ad Hoc Planning Committee recommends that this preliminary planning effort be followed by a substantial ongoing planning process led by County Mental Health Administration which includes clients, families,contract administrators, front-line County and contract staff, and union representatives. One-half of.the committee should be comprised of consumers and families. A planning process of this nature will enable Contra Costa County to continue to move toward a more cost effective,client centered,community based system. We look forward to having a new Mental Health Director who will continue the open door policy of inclusion and the serious development of ongoing working relationships among all _ groups and constituencies. We,believe that our County has the will to offer critically needed support to our most vulnerable population. iv Ml MENTAL H%ALTH COMMISSION 595 center Avenue, Suite 200 Martinez, CA 94553 NAME PHONE POSITION APPTD, TERM E_N_D pistrict I Joan Bartulovich H: 529-1134 Family Member 6/22/93 6/30/94 7102 Donal Avenue E1 Cerrito, CA 94530 Taalia Hasan H: 234-7590 Family Member 6/22/93 6/30/95 1300'Amador St, 118 O: 215-4670 Richmond, CA 94804 VACANCY (Miller) H: At Large 6/22/93 6/30/96 0: District 2 Marie Goodman H: 372-0545 Family Member 6/22/93 6/30/95 3331 Brookside Dr. Martinez, CA 94553 Cynthia Miller H: 372-7678 At Large 6/22/93 6/30/94 105 Jose Lane O: Martinez, CA 94553 Pat Risser H: 671-4886 Consumer 6/22/93 6/30/96 141 Golf Club Road Pleasant Hill, CA 94523 District 3 Ralph Hoffmann H: 837-4498 Consumer 6/22/93 6/30/96 69 St. Timothy Court Danville, CA 94526 Wayne Simpson H: 820-2163 Family Member 6/22/93 6/30/94 897 Dolphin Court Danville, CA 94526 Suzanne Strisower H: 930-8778 At Large/ 6/22/93 6/30/95 3159 Lippizaner Ln. O: 943-2347 Child Advocate Walnut Creek, CA 94598 District 4 Violet Smith H: 680-1632 At Large 6/22/93 6/30/94 1103 Temple Drive Pacheco, CA 94553 Joan Sorisio H: 672-2292 Family Member 6/22/93 6/30/95 F.O. Bax 612 O: 825-1921 Clayton, CA 94517 Veronica Vale H: 676-5313 Consumer 6/22/93 6/30/96 4819 Clayton Rd. 116 Concord, CA 94521 District 5 Anne Mc Laurin H: 625-7330 Consumer 6/22/93 6/30/94 99 Adams Court O: 933-0990 Oakley, CA 94561 VACANCY (Puente) H: At Large 6/22/93 6/30/96 0: Linda Trowedale H: 754-1199 Consumer 6/22/93 6/30/95 2824 Honeysuckle Circle Antioch, CA 94509 Supervisor Representative Jeff Smith H: 646-2080 Bd. of Supes 6/22/93 6/30/96 651 Pine St. 1108A Martinez, CA 94553 The Mental Hea th commission meets on the Fourth Tuesday of the mouth. from 4130-600 at 595 Center Avenue Suite 200 Martinez. 4 HOUSING REPORT OF THE CONTRA COSTA COUNTY MENTAL HEALTH COMMISSION Adopted by: THE MENTAL HEALTH COMMISSION 595 Center Avenue, Suite 200 Martinez, CA 94553 June 28,1994 ACKNOWLEDGEMENTS The ad hoc Plan for Adult Mental Health Services which was developed by the Mental Health Commission in FY 92-93 emphasized the critical importance of stable living conditions and expressed concern about the limited availability. within Contra Costa Counly. o both needed and preferred housing options for people with mental disabilities. Since there was insufficient opportunity to explore this subject in depth, it was recommended that the Special User Housing Plan of November, 1988, be revisited and updated. Responding to that recommendation, the ADULT COMMITTEE OF THE MENTAL HEALTH COMMISSION undertook a study of existing and needed housing within Contra Costa County during FY 93-94. Members of the Commission, family members, and consumers -- from the Commission, from the Alliance for the Mentally III (AMI) and from the Contra Costa Network of Mental Health Clients -- who participated in the study included: Joan Bartulovich, Edith Benjamin, Pat Fuqua,Lawrence Gault, Ralph Hoffman, Monica Larsen,Jay Mahler, Herb Putnam, Pat Risser, Wayne Simpson,Joan Sorisio, Violet Smith, and Veronica Vale. They were greatly aided by the active participation of knowledgable staff members from the County Division of Mental Health, from the county's Conservatorship program, and from contract agencies, including: Diane Frary, Benita Harris, Sharon Lundholm, Barbara McCullough, Julie Peck, Carol Sebilia, and Vicki Smith. We wish to express our deep appreciation to all of the above-named participants and to the many others who shared information with the committee, reviewed the draft and provided valuable input. Joan SorisioC6r, Adult Committee Violet Smith,Chair, Mental Health Commission TABLE OF CONTENTS Acknowledgements .............................. ................. .................Inside cover Summary ........................................................................ ...............................I......I - Ix Introduction ... 1 ....................................................................................................... HousingIssues ........................ .................*...........................................................6 Population to be Served* .............................•---••--------•---•---............--. .......... 12 LivingSituations: ........................................................ ........ .................14 Living with Family Members ...................... ................................­....15 Permanent Independent Living Situations.............................................16 Special User "Housing" ..................................................*...... 19 Licensed Board and Care Homes .............................................22 Supported Independent Living (SIL)......................................... ...­­*........***......*....*...**...26 Single Room Occupancy (SRO) ...............................................2 9 Transitional Housing ................................................................­3 0 Residential Treatment ........................................................­3 0 Crisis Residential Treatment 32 ................................................ State Hospitals and Institutes for Mental Disease....................3 3 Homelessness ....... ......................... ........ ................................ ....3 6 Conclusion ................................................................................................... ...40 There are a great many terms used to describe the people who use mental health services. We have tended to use the terms "consumer" and "client" interchangeably, although the former is generally preferred. Perhaps the best term,though awkward,is the phrase"person with mental disability",since it places the focus on the person and not on the disability; we have therefore used this term frequently thoughout the report. **There are also a vast number of terms which are used to describe and/or categorize residences of all types. We have attempted to rely on terms in general usage and to define them in the appropriate sections,as indicated above,but it is important to acknowledge that there is no universally-accepted vocabulary or categorization of housing targeted for people with mental disabilities. For example,we have included Residential treatment and Institutions under the Special User"Housing"category but quotation marks were used to highlight the fact that these programs do not constitute housing in the sense of permanent homes. CONTRA COSTA COUNTY MENTAL HEALTH COMMISSION HOUSING REPORT -- JUNE, 1994 SUMMARY INTRODUCTION The need to ensure the availability of safe, affordable, independent housing for people with a mental disability has become a top priority for mental health systems throughout the nation, due to: First, the recognition that: (a) housing is a right and necessity for all people; (b) having a decent place to live should be independent of treatment or compliance with non-housing-related issues; (c) frequent moves are unsettling; and that, therefore, (d) a stable, permanent living situation is necessary for the successful treatment and rehabilitation of persons with serious mental disabilities; Second, the commitment to a client-driven system, which respects clients' preferences, and extensive survey information which documents the fact that clients strongly favor independent living over institutional or semi-institutional placements; Third, concern that limited availability of Special User Housing makes it impossible to meet the needs of more than a small proportion of consumers of mental health services and that the unavailability of alternative housing resources results in increased use of costly inpatient and crisis services; and Fourth, a growing recognition that effectively addressing the problem of homelessness requires the provision of acceptable, affordable housing options AND the provision of adequate support services for persons with special needs who are homeless. The Ad Hoc Plan adopted by the Commission last year identified the lack of adequate, affordable, community housing as cne of the most important missing links in our County's ability to meet the needs of Contra Costans with mental disabilities. I In order to aid Contra Costa County in planning a response to this important challenge, the Mental Health Commission undertook to study the housing situation and prepare a report which: • Identifies the current and future needs of Contra Costa County residents with mental disabilities; • Describes the housing programs and resources which are (and are not) now available in our county; and • Offers recommendations to strengthen and expand the quantity and variety of housing options in order to more adequately meet the housing needs of the county's diverse population of mental health clients/consumers. FINDINGS 1) POPULATION: Approximately 7,200 mentally disabled adults (18 to 60 years old) are served by the County's mental health system each year.** 2) INCOME RESTRICTIONS: The vast majority (estimated at 70%) of persons with mental disabilities receive only Supplemental Security Income (SSI), placing them at 27.6% (!) of the median per capita income in Contra Costa. With incomes substantially below the poverty level, SSI recipients have little chance of securing adequate housing, especially when the median monthly apartment rent exceeds 100% of the total monthly SSI payment. 3) LIVING SITUATIONS: A. LIVING WITH RELATIVES: • Approximately 3,400 mentally-disabled persons (47% of the county's adult clients) are living with relatives, generally their parents; • More than half of the caregiving parents are over age_65: • 59% of those who live with relatives would prefer to live elsewhere; • Those who wish to move are prohibited from doing so by a lack of adequate alternatives and/or insufficient personal financial resources. * Sources for all numbers contained in the Findings are documented in the full sport. **Based on data provided by the Mental Health Computer system(known as PSP)and including clients served by the county's Mental Health clinics, contract service providers,Mental Health Crisis Service,Merrithew Hospital psychiatric wards, Institutes of Mental Disease,and Napa State Hospital. II B. LIVING INDEPENDENTLY: • Nearly 2,250 (almost 32%) of the County's clients are currently living on their own, without any formal supervision and, most often, without any housing-related support (other than that provided by their families); • About 1,450 are living alone in apartments or houses scattered throughout the community; • The remaining 800 are living with unrelated persons, including about 100 who are living in unlicensed group homes; • Both consumers and their families strongly favor apartments over group settings, despite the limitations imposed by poverty and the potential social isolation which results from living alone. C. LIVING IN SPECIAL•USER "HOUSING": Approximately 800 adult clients (11%) five in "housing" (including permanent housing, residential treatment, supervised homes, and institutions) which has been specially-designated ,and funded or licensed by the government) for use by persons with mental disabilities, as decribed below: 1. Board and Care Homes: • Over 500 clients (7% of the total and two-thirds of those in special residential programs) live in Board and Care homes; Board and Care Homes are licensed by the State to provide care and medication supervision; • There is currently a shortage of Board and Care operators who will accept persons with mental disabilities at the SSI rate, particularly in East County; • 33 of the 40 Board and Care homes serving persons with disabilities are small homes, licensed to serve 6 or fewer people; • Due to economic considerations, Board and Care Homes often have environmental, programmatic and/or staff deficiencies; • Board and Care operators currently have no incentive to prepare and/or encourage their residents to move into independent living situations. 2. Supported Independent Living (SIL): • Supported Independent Living (SIL) provides rental subsidies and supportive services to residents of apartments which have been especially developed and targeted to serve persons with mental disabilities; • When several recent changes are fully implemented, there will be 70 beds in Supported Independent Living units, an increase of 33 beds since the 1989 Special User Housing Report; - Supported Independent Living is the preferred housing of a great many clients and families; • Only about 1% of all consumers can be served by the present SILs. 3. Single Room Occupancy (SRO): - Since the 1989 Special User Housing report, 25-30 slots have been added in a Single Room Occupancy Hotel, but no housing-related support services were provided; - Needed support services are currently being developed. 4. Transitional Housing and Residential Treatment: - Transitional housing and residential treatment programs are necessary parts of the continuum, diverting clients from hospitalization and providing a brief respite from situational stresses; - There are 19 transitional housing beds, 22 residential treatment beds, and 9 crisis residential treatment beds in the County.programs; * Because stays are time-limited, the 50 beds were able to accommodate approximately 200 people (under 3% of the total client population) during the past year. 5. Institutional Settings: - Approximately 1.5% of clients spent sometime in State Hospitals and Institutes for Mental Disease (IMDs) during the past year; * As part of the plan to decrease the State Hospital census by 34 persons, the Mental Health Division contracted for 10 additional slots in IMI)s last year, a net (and welcome) decrease of 24 institutional slots. D. HOMELESS SHELTERS: - Estimates of homeless Contra Costans with mental disabilities range from 2,000-5,000 per year; - About 374 clients (5% of those receiving billable mental health treatment services during the past year) were homeless; - Approximately 2/3 of the mental health clients who were homeless were seen in the Crisis Center, and 1/3 received ongoing help from clinics; # Additional hundreds of homeless persons with mental disabilities received limited mental health services in homeless shelters and multi- purpose centers (but these persons are not currently included in the computerized data base because the services provided are not Medi-Cal reimbursable). IV RECOMMENDATIONS o Survey consumers to ascertain their preferences and needs and to ensure that housing planning is client-directed. o Develop alternative housing options for adult clients living at home. The need for alternative housing will become critical when large numbers of elderly parents are no longer able to provide at-homecare. Varied housing options should also be available whenever the needs/desires of adults living at home would be better served by other forms of housing. o Collaborate with cities, planning commisisions and housing developers to urge/encourage the extensive development of affordable housing, including units targeted for persons with mental disabilities. o Increase access to existing community housing, by: - Working with communities and landlords to secure increased access to housing located throughout the county; - Securing additional rental subsidies, especially Section 8 vouchers and certificates earmarked for persons with special needs; and - Providing other financial supports to persons with mental disabilities, including, for example, a rotating fund for first and last months' rent (as proposed by Mental Health Consumer Concerns). o Provide a full range of support services, on-site when necessary, to help maintain people in their own homes in the community, including: help in locating and securing access to rentals; help in dealing with landlords, neighbors and roommates; and training in skills necessary for independent living. o Include more consumers as housing support staff members (an action which has already been initiated by the Mental Health Division in relation to several Special User Housing programs). V o Help Board and Care Operators to: (a)upgrade their services and (b) encourage/prepare clients to move on to independent living situations by: - Providing monetary incentives, augmentation, and/or mental health staff assistance to Board and Care Operators, and Developing standards for, and increasing monitoring of, both large and small Board and Care Homes serving people with mental disabilities. o Provide supportive services to persons residing in SROs to aid them in adapting to this form of high-density housing, (Such a program is currently being developed by the Mental Health Division for the River House hotel). o Retain and expand transitional housing and residential treatment programs, as needed, to divert clients from hospitalization and provide a brief respite for clients and caregivers. o Place emphasis on preserving permanent residences and preventing homelessness, by: - Intervening and offering support when an individual with mental disabilities is at risk of losing his/her home, and - Making every effort to secure and/or preserve clients' permanent residences during the time they are in short-term residential programs. o Focus on upgrading programming at IMDs and continuing to develop alternative placements so that the lengths of stay can be reduced. Continue all efforts to reduce reliance on institutional placements by providing adequate alternatives. o Strengthen the provision of mental health services to homeless people who have mental disabilities, by: - Extending the permitted length of stay at the East County shelter for people with mental disabilities who are homeless; - Expanding the mental health supportive services provided at the generic homeless shelters; and - Providing substantial follow-up services to aid homeless persons with special needs to secure and maintain stable housing when they are discharged from the shelters. VI Together, these recommendations will provide measured movement toward our goal of increasing and maintaining a diverse supply of safe, affordable,permanent community housing, together with the supportive services which are needed to maintain clients in the housing of their choice. These recommendations will also serve to strengthen and improve those special residential services which are, and will continue to be, needed until both the clients and the system are fully prepared for independent living. IMPLEMENTATION RECOMMENDATIONS The foregoing recommendations can become reality if everyone shares in the vision and makes the required commitments. We therefore recommend that: I. THE BOARD OF SUPERVISORS AND COUNTY ADMINISTRATORS: o Endeavor to ensure an adequate, stable and dedicated funding source for mental health services. This is essential if the Division is to provide the array of programs and supports which are needed to divert persons with mental disability from costly hospital- based care and to maintain them in less expensive, community-based programs which foster independence. o Dedicate State and Federal funds, generated by the billing for mental health services, to the provision of mental health services rather than using these funds to offset General Fund dollars; o Work with the State to see that realignment funds are maintained intact for mental health; VII; o Restore the past, and allocate the future,dollars saved by the reduction in State Hospital usage to the County mental health budget. Because of the lead time that it takes to develop housing alternatives, these funds should be trusteed beyond the current fiscal year and beyond the reach of the General Fund. H. CITY AND COUNTY GOVERNMENTS, and all of the planning commissions and housing departments under their jurisdiction: o Develop housing that persons with very limited incomes can afford, by actively participating and collaborating with each other and with federal agencies and appropriate developers; o Support development of targeted units for persons with mental disability throughout the community; o Join in advocating for an end to NIMBYism. III. THE MENTAL HEALTH DIVISION: o Designate a person with on-going responsibility for housing development so that housing planning and implementation can go forward with added impetus; o Make the provision of housing supports a top priority, continuing and expanding the recently-implemented program in which consumers are employed to provide housing supportive services to clients residing in varied housing throughout the community; and o Continue to collaborate with community-based providers to implement, to the fullest extent possible, the foregoing recommendations in relation to Supported Independent Living, Board and Care homes, residential treatment, and other targeted programs. IV. THE ADVOCACY GROUPS, (Mental Health Commission, Alliance for the Mentally I11, and Contra Costa Network of Mental Health Clients): t VIII o Fully support the government and the Mental Health Division in the foregoing efforts; r o Maintain vigilance in ensuring that safe and affordable housing becomestremains a priority in our County; o Actively work to educate communities to a greater receptivity to clients as neighbors and to counteract the "Not- in-my-backyard" syndrome and all other efforts to thwart the development of affordable housing for special needs populations. The Contra Costa County Mental Health Commission believes that the Mental Health Division of the Health Department has made very important progress during the past year, progress which derives from inspired and responsive leadership and a solid commitment to the principles expressed in this report. As Commissioners, we pledge to do all that we can to continue this forward movement, to strive to ensure that mentally-disabled people in Contra Costa have access to safe, affordable, permanent homes and the supportive services which they need to retain and maintain those homes. We hope that the Board of Supervisors and all segments of the community will join us in support of this important effort. IX Y INTRODUCTION BACKGROUND: Early in the 19th Century, people with mental illness "who were confined to poorhouses and jails or held without care in their family's homes were viewed as in need of treatment in a benevolent environment. An era of institutionalization ensued that was to last more than a century. During this period, large 'asylums' were created" . These asylums, generally far-removed from their communities, were intended to be short-term and treatment-oriented, but they quickly deteriorated into custodial, long-term "homes", providing for all basic needs but creating institutionalization (a passive condition of habituation to an institution and a corresponding inability to function outside of it). By the 1970's, aversion to the effects (as well as the cost) of institutionalization led to the de-institutionalization movement wherein clients were to be discharged to model community facilities. Unfortunately, adequate funding for these facilities was never ' provided. In addition, Supplemental Security Income (SSI) rules. became more stringent and federal housing subsidies were drastically reduced. As a result, "most ex-patients were simply discharged to their families, or to custodial board and care and nursing homes...or they were left to fend for themselves in the open market"* . CONTINUUM OF CARE: During the 70's and 80's, the mental health system developed the "continuum of care" concept. This model involves the development of residential facilities with different levels of service, supervision, and restrictiveness, including, for example, nursing homes, board and care settings, halfway houses, quarterway houses, and supervised apartments. *Ridgway,Priscilla and Zipple,Anthony M.,The Paradigm Shift In Residential Services: From the Linea Continuum to Supported Housing Approaches. Psychosocial Rehabilitation Journal, Vol.13,No.4,April,1990. - 1 - Mental Health Commission Housing Report-June,1994 The programs are organized developmentally, and the client moves to progressively less (or, occasionally, more)restrictive settings along this continuum as his/her level of functioning changes. The goal is for the client to move upward through the continuum until, finally, he/she achieves fully independent living and requires no further support. In spite of the general acceptance of the continuum concept and concerted efforts within the mental health community to provide sufficient specialized services, there is a growing belief that the continuum alone cannot fulfill the housing needs of people with mental disabilities. This is reflected in a growing movement which advocates for the provision of supportive services to enable people with mental disabilities to reside in ordinary housing scattered throughout the community -- the new Supported Housing model. REASONS FOR THE SHIFT TO A SUPPORTED HOUSING MODEL: FIRST: due to funding shortages, very few communities have a complete continuum of services available and even those that do can serve only a small fraction of the population in need. The unavailability of subsidized, affordable housing often means that clients cannot "graduate" from the residential treatment continuum to the desired independent living but can only be discharged to custodial boarding houses, inner-city residential hotels, shelters, or the streets. "Gridlock" is p—rWuced in the system as programs stop requiring people to move on, permitting them to stay in settings that are less than ideal for them, because there is no other place for them to go. Even costly inpatient services are sometimes pressed into service as housing when patients have no housing and no prospects of acquiring housing. Faced with these practical problems, "many systems have intensified their efforts to develop residential programs but found their way blocked or slowed by community opposition and the lack of funding for congregate residential facilities." SECOND, the emergenct-, of family and client movements during the 1980's also focused attention on critical housing issues. The Alliance for the Mentally Ill (AMI) gave voice to the concerns and needs of the many families whom deinstitutionalization had forced Ibid. - 2 - ti Mental Health Commission Housing Report-June,1994 into the role of primary caregiver. The empowerment movement among consumers was even more significant, with clients strongly communicating the message that housing needs are of paramount importance in the lives of persons with psychiatric disabilities -- that they wanted regular housing,jobs, income, relationships, and a place in the community. THIRD, major pressures have been produced by the rapidly- growing.incidence of homelessness. This has been of particular relevance to the mental health system because a substantial proportion of homeless persons have serious mental disabilities. The lack of residential alternatives for this population has produced the socially and politically unconscionable situation where vulnerable individuals have NO place to live. It has also been reflected in increased demand for acute inpatient and emergency services as more and more homeless individuals are admitted to the hospital or emergency room as the housing of last resort. And we, as a State and as a County, have contributed to this unconscionable situation by reducing the number of institutional beds without, concurrently, making financial provisions for an adequate number of supported beds in the community. FINALLY, there is a growing body of research showing that Supported Housing works, that even persons with very serious mental disabilities can live independently if they receive adequate support. This research has also shown that stability and satisfaction in one's housing can contribute to the effectiveness of rehabilitative interventions without having housing and treatment tied together. DESCRIPTION OF SUPPORTED HOUSING: The shift to a Supported Housing model rests on two fundamental principles; namely, (a) that having a home in the community is a right for all persons, including persons with severe mental disabilities, and (b) that a stable home is a prerequisite for effective treatment and psychosocial rehabilitation. Major components of the Supported Housing model include: (1) A real "home", not just a residential treatment setting or "guest" status in someone else's home. Supported housing promotes the use of regular housing stock within the community, including all - 3 - r Mental Health Commission Housing Report-June,1994 of the typical kinds of housing used by nondisabled community members-- a private room and bath, a private or shared apartment, a mobile home, even the hope of owning a condo or house of one's own; (2) Consumer choice, not placement; (3) Social integration rather than homogeneous grouping by disability; (4) A shift from staff to client control and a separation of treatment from housing. The client "carries the keys" and can make decisions about the rhythm of life, including whether or not to accept treatment. "The supported housing model decouples the services from the building or facility and links them to the client as an individual...As each client's needs change, the services and supports can be introduced into or withdrawn from the environment. The client does not move as his or her needs change, but remains in stable housing while the services are altered", ; (5) An emphasis on permanent, rather than transitional, housing; and (6) Most importantly, the provision of flexible supports -- whatever is needed for however 1"it is needed -- to enable the client to achieve and maintain a permanent independent home. Because of the serious long-term nature of psychiatric disabilities, few people with such disabilities can make a fully successful adjustment without some supports and ongoing services, although the nature, magnitude, and duration of the supports will differ significantly from individual to individual. THE "SUPPORT" PART OF SUPPORTED HOUSING: Because of the emphasis on tailoring services to the needs of individuals, a very broad range of support services has been identified -- ranging from rental subsidies to homemaker services and from medication monitoring to skills training. In a consumer survey undertaken by Mental Health Consumer Concerns in Contra Costa in 1989, clients were asked to specify the supports they would need for success in *Ibid. - 4 - Mental Health Commission Housing Report-June,1994 independent living. Their top priorities were money (75%) and affordable housing (73%) followed by emotional supports (56%) and training in living skills (54%). Activities suggested for support personnel, as described in the literature, include: training in such living skills as cooking, shopping, managing money, and securing transportation; helping to secure and move furniture; working with roommates on task-sharing; providing crisis intervention during periods of stress; negotiating with landlords and utility companies; locating community support groups; and numerous other activities to help the client acquire and maintain a home. There is general agreement that the support must be flexible and that it is preferable to provide it in the client's own home, insofar as possible. As noted, the quantity of service will vary tremendously from client to client and from time to time. Some may require daily visits for medication monitoring and ongoing support while, for others, a call once a month may be sufficient. As a result of this anticipated diversity, it is difficult to project a cost, but data from a national evaluation of the Housing Demonstration Projects supported by the National Institute for Mental Health (NIMH) suggested a range of approximately $4,000 to $12,400 per client per year.* IN SUMMARY, it is clear that no one approach can accommodate the full spectrum of diverse housing needs. Historically, the continuum of care model has not been able to produce enough housing to meet the needs of all; and in some instances, programs which were intended to be transitional ended up serving as "defacto long-term housing" because the independent living options needed at the end of the continuum were unavailable. Similarly, "supported housing cannot, nor should it be expected to, subsume all of the roles that specialized residential treatment can play in an overall system of community support" ** . In the sections which follow, we will explore both independent living and the varied Special User Housing programs which grew up under the continuum of care model. *Livingston,et al.,1991,cited in Innovations and Research. Vol. 2,No. 3,1993. **Ridgway and Zipple, op. cit. - 5 - Mental Health Commission Housing Report-June,1994 HOUSING ISSUES The need for a greatly expanded housing program--including both special user housing and supported housing-- was acknowledged and supported in two Contra Costa County Special User Housing Plans* , developed in 1988 and 1989. The implementation of the many recommendations contained within those reports has been impeded by multiple factors: o Shortage of funds; o Failure to designate a full time person to advocate and plan for housing for persons with mental disabilities; o An all-too-persistent discriminatory attitude within the community--the Not-In-My-Backyard syndrome (known as NIMBYism); and o An insufficient commitment to affordable, specialized housing, by all levels of government. As a result, the pressing needs for affordable and special user housing which were identified in the 1988-89 housing reports have remained virtually unchanged. During the intervening 6 years, however, the total population and the number of homeless in our County have grown substantially, so that the need for housing is even more urgent today. This is not a problem which can be solved by Mental Health, or Health, or any other department alone -- it is a problem which will require the best efforts of all segments of our community. We hope that this report will help provide the impetus for change. *The 1988 report was prepared by Housing for Independent People(HIP), under contract to the Contra Costa Health Services Department; the 1989 report was a follow-up draft prepared by the Alcohol/Drug Abuse/Mental Health (A/DA/MH)Division of the Health Services Department. A/DA/MH is the forerunner of the present Division of Mental Health. - 6 - Mental Health Commission Housing Report June,1994 MISSION: The mission statement which guided the Special User Housing Plan of 1988 is equally relevant to the current effort. les stated goal is: "To increase and maintain county-wide a diverse supply of a&, sant r_and decent housing (which is)&DElab&I , acce5sible and appropriate for low-income individuals...who have a persistent mental disability...by providing long-term stablenormalizedcommunity living situations...accompanied by the design and delivery of appropriate supportive services aimed at maintaining clients in their housing of choice" (underlining added) SAFETY: Let us examine each of these component elements in turn. First, we note that considerations of safety. sanitation, and accessibility late to the neighborhoods in which the housing is situated as well as to the condition of the properties. Economically depressed housing is generally of sub-standard quality,poorly maintained, and crowded; in addition, it is most often located in unsafe, multi-problem neighborhoods, with little access to transportation, services, or other amenities. AFFORDABILITY: Access to safe, sanitary and accessible housing is clearly related to a&Wabilily. And, because most persons with disabilities are poor, they are almost always forced to live in economically depressed, generally sub-standard housing, and, at the same time, they are paying a disproportionately large share of their incomes for this housing. Available information sources* suggest that approximately 70% of persons with psychiatric disabilities have SSI as their sole income source. The current SSI paymentthe total income on which .- .ents must subsist. is $603.40 per month ($7.240.80 per year) DOWN from$646 peri in 1992. According to the 1989 Special User Housing Report, economists use the median income of a particular area to define income status. The The housing study conducted by the Contra Costa Chapter of the Alliance for the Mentally III and preliminary data developed as part of the State of California Outcome study. - 7 - Mental Health Commission Housing Report-June,1994- median annual income per person in Contra Costa County was $26,215 in 1991, the fourth highest per capita income in the State. This places SSI recipients in Contra Costa in the y=VERY LOW income category since "very low" is defined as "under 50%",and Contra Costa SSI recipients are FAR UNDER the 50% which is characterized as "very low"; in fact, SSI recipients are receiving only 27.6% of the median Wr capita income in Contra Costa. The median rent in Contra Costa County in 1993 ranged from $628/month in West County to $650/month in Central County, more than the TOTAL monthly SSI payment. The median rent in the lowest 10th percentile in West County was $535/month.* . It is clear that SSI recipients simply cannot afford apartments in Contra Costa County. unless they receive subsidies or find housemates. Being poor also dramatically impacts a person's quality of life, making it next to impossible to have a telephone, take a bus, go to a movie -- or engage in any of life's "normal" and pleasurable activities. Assistance in accessing subsidies, locating and getting along with a roommate, managing money and finding recreational opportunities are all forms of support which could prove very helpful to an SSI recipient struggling to maintain an apartment. SUBSIDIZED HOUSING: According to the Housing Authority, there ' are approximately 6,000 low-cost, subsidized housing units in Contra Costa, although the only ones with relevance for people with mental disabilities are the Section 8 programs targeted for the Elderly/ Disabled populations. There are two types of Section 8 Housing which "exemplify the federal government'sdecision to turn away from building public housing in favor of providing assistance that allows poor people to rent housing in the private market"**: (1) The Section 8 Certificate Program, enacted in 1974, provides that tenants will pay 30% of their adjusted income toward rent, with the Public Housing Authority paying the remainder directly to the owner, and (2) The Section 8 Voucher Program, implemented in 1988, "has no absolute limits on rents, and the percentage of the tenant's income * Annual Report on Housing in the Bay Area. 1993,Bay Area Council. - 8 - Mental Health Commission Housing Report-June,1994 paid toward rent is not fixed ...Voucher holders may lease a unit renting for more than the payment standard, but they must make up the difference themselves , thereby paying more than 30% of adjusted income for rent—This can cause trouble later, particularly for people receiving Supplemental Security Income (SSI) and others with very limited incomes." Figures for 1992**indicate that there are approximately 1500 Section 8 units targeted for senior and/or disabled persons in Contra Costa County. Precise figures on distribution of these units are not available, but it is estimated that there were no more than 150 subsidized units occupied by 1&rsons with mental disabilities las year, The demand for Section 8 vouchers and certificates far exceeds the supply and waiting lists are very long and very frequently closed. Shelter, Inc. now has funding to establish and support 80 Supported Housing units; these units, to be subsidized for one year, will be available to persons with mental disabilities if they meet the other McKinney Homeless program qualifications. The Housing Authority of Contra Costa County has also received a grant to provide 100 vouchers for families and individuals who are homeless and mentally-disabled; and it is anticipated that an additional 40-50 vouchers will become available for mentally-disabled persons who are homeless or in transitional shelter settings. The additional vouchers are a welcome response to the urgent need for these subsidies for mentally-disabled persons who are, or are at risk of becoming, homeless. Nonetheless, it is apparent that a rnuch more substantial increase in the number of targeted Section 8 vouchers is needed if the hundreds of SSI recipients with mental disabilities who desire independent living are to be able to afford safe and decent housing. It is essential that every effort be made to help consumers access as many certificates and vouchers as possible, by advocating for more vouchers and by taking advantage of the HUD regulation which "requires PHAs to provide 'reasonable accommodation' to people with disabilities in their Section 8 *The Housing Center Bulletin, Vol. II, No. 4, January, 1994 **Provided verbally by staff of the Contra costa County Housing Authority. - 9 - Mental Health Commission Housing Report-June,1994 application procedures. One type of reasonable accommodation could . include case management staff assisting with the application process" (Ibid., the Housing Bulletin) APPROPRIATE HOUSING OPTIONS: The issue of appropriateness is of paramount concern, since the population served by the mental health system is by no means homogeneous, despite the fact that the system is limited to persons with "severe and persistent" disabilities. Within this general population are older persons who have spent many years in institutional settings, settings which have ill prepared them for life "on the outside". Within this population are young adults who have been homeless and rootless and desperate and surviving any way they could. Within this population are also persons who have children and jobs and the skills they need for independent living. The individual variations are endless, but the significant point is that all people, including persons with disabilities, differ in skills, in social aptitude, in adaptability, in tolerance for various situations, and in the need for supervision. Most particularly, everyone differs in the types of housing they choose to live in. Being able to choose your place of residence is part of what makes a house a home. Our plan must provide the full array of options required to fulfill the needs and preferences of all of the diverse individuals with mental disabilities. THE NEED FOR SUPPORT: Since there are people who are conditioned to restrictive living conditions and others whose impairment is so severe that they seem to require extensive supervision, it is essential to retain a variety of structured. special user housing--at least until both the clients and the system are FULLY PREPARED for success in independent living situations. What would it take to be fully prepared? There is a growing body of research showing that people tend to live up to expectations (both positive and negative) and that most clients -- including those with very severe impairments -- can and do succeed in stable, long-term, normalized, independent housing PROVIDED THAT THEY RECEIVE THE SUPPORTS THEY NEED FOR AS LONG AS THEY NEED THEM. What is required, then, is access to appropriate, affordable, permanent "regular" housing AND all necessary supports. And, it must be emphasized that, for clients whose disability is severe - 10- Mental Health Commission Housing Report-June,1994 and/or for those who have had little opportunity to develop needed skills, there will be need for a high level of support. As indicated on page 4, the nature, duration and magnitude of support will differ from time to time and from client to client, and the cost will fluctuate in relation to these factors. The challenge is to find methods which enable the system to be flexible enough to respond to changing needs, adding and withdrawing supports as changes occur. According to Carling*: "Often agencies find it initially difficult to make the transition...to working on resource coordination and housing development. Many local programs have made this transition either through extensive development of apartment living options, through creating a housing assistance program, or through routinely dealing with housing as a part of the case management function." Several communities in California have developed experimental models, called Integrated Service Agencies (ISAs), which are designed to provide a variety of services in a flexible manner, including supportive services, on-site, at the homes of their clients. Providing permanent, support-enriched independent living opportunities for every person with mental disabilities is the goal. The danger is that, if we fail to provide su #icien support, we will repeat the tragic mistakes of deinstitutionalization, that of pushing people out to a promised "better place" and then failing to ensure that the promised place is really there. And failing to provide adequate living options to meet the needs of people with mental disabilities translates into a continuing use of expensive institutional care and/or the very visible presence in our communities of large numbers of people who are homeless and disabled. * Carling,Paul J., Ph.D. , A Psychiatric Rehabilitation Approach to Housing, John Hopkins University Press, 1985) - 11 - Mental Health Commission Housing Report-June, 1994 POPULATION TO BE SERVED Today's limited mental health resources are directed toward serving those characterized as having a serious and persistent mental disability; ie, having a "DSM-HI-R diagnosis that may lead to chronic disability and functional limitations in major life activities which require treatment and services over an extended time -- sometimes throughout a lifetime"* Based on projections from national data, we may estimate that there are approximately 16,000 persons in Contra Costa County (2% of the total population) who may be characterized as having a "serious and persistent mental illness" as defined above. National data also suggest that 50% of these persons never utilize the public system. On this basis, we might expect to find a population of 8,000 people (including children and adults) who are in need of public mental health services, and the actual population which is served by public mental health approximates this estimated number. The total number of adults who are currently being served by the county's mental health system is 6,971 ** In addition, there are an estimated 260 clients being served by the county's conservatorship program, for a total of 7.231 persons with mental disabilities who receive publicly-supported services. In addition, there are a great many people who have mental health problems and significant housing needs but who are presently outside the system's service population, for the following reasons: 1) The definition of eligibility has been limited to the most seriously impaired as a result of funding restrictions, 2) Homeless persons generally do not receive (or may not accept) ongoing services from the Division; they are, therefore, significantly under-represented in the Division data, *Definition in use in Contra Costa County ** Based on the system's computer compilation of billable cases for the period May 1, 1993 through April 30, 1994. - 12 - Mental Health Commission Housing Report-June,1994 3) Persons with a primary diagnosis of substance abuse are not eligible for services under the present definition; yet a great many of these persons have mental disabilities and are in need of housing; 4) Some people move in and out of the system and may not be included in the count at any given time; 5) Persons with substantial work histories, who are receiving Social Security for the Disabled (SSDI) and Medicare rather than SSI and Medi-Cal, may be using private, rather than public, mental health resources and would therefore be unknown to the system; while SSDI recipients receive higher benefits than SSI recipients, they are still in need of affordable housing; and 6) Some families have been instrumental in moving their family member to other locations in order to secure housing and services that are not available here. These factors would make it difficult to estimate the precise extent of the unmet housing need, even if full information on the housing needs of current clients were available. While these data are not now available, the recently-implemented Coordinated Services, in which all clients are being asked about their housing situation and their housing goals, will provide definitive data about the housing needs of the client population within the next year. We need not wait for additional data, however, since the information contained in the following sections makes it abundantly clear that there is a very large already-identified population with urgent housing needs. Developing plans and strategies which will enable us to provide an adequate and anp_rQpriate range of housing options for this population is the goal toward which we must strive. These plans and strategies can be fine-tuned when additional information becomes available. - 13 - Mental Health Commission Housing Report-June,1994 LIVING SITUATIONS OF CONTRA COSTA COUNTY CLIENTS The following chart portrays the proportion of adults with mental disabilities* who were living in each of the major housing categories in the year from March 1, 1993, through February 28, 1994. Specific housing categories have been clustered to convey the larger picture. Living with family� member 47% i .rl�¢.Fes.. +i'.�.yy'�',�."Y." h`y•v ® These findings generally correspond with those of a national study by the National Alliance for the Mentally Ill (NAMI)** in which respondents reported that 42% of their mentally disabled relatives lived with family members and 14% lived in supervised housing in the community. * Information from the mental health system's computer, including all persons who received billable mental health services during the year May 1, 1993, through April 30, 1994. **Steinwachs, Kasper, and Skinner, 1992. - 14 - Mental Health Commission Housing Report-June,1994 LIVING WITH FAMILY MEMBERS As shown above, approximately 3.400 persons with mental disabilities (47% of the county's current caseload) are residing with some member of the immediate or extended family. This is clearly an extremely significant part of the housing picture, yet it has been given very little attention. We know from our Contra Costa data that nine-tenths of those who live with family members are living with members of their immediate family and the balance are living with members of their extended family, but we have no speck information on which family members are involved. It may be presumed that some clients are living with their spouses and/or minor children, some are older persons living with grown children, and some, perhaps, are residing with siblings. All indications are, however, that the vast majority of clients living with family members are adults residing with their parents. The National Alliance for the Mentally Ill (NAMI) study cited earlier notes that most of the caretakers were parents and that more than half were over 65 years of age. This situation is a tremendous source of concern and anxiety for the elder parents -- because they live in fear of the day when they can no longer cope with the day-to- day needs of their loved ones and, often, because they are aware that living with parents is not the optimum housing arrangement for adults -- and it must be of equal concern to the county. In 1992, the Alliance for the Mentally Ill in Contra Costa County (AMI-CC) conducted a survey of families'perceptions of the housing situations and preferences of family members with a mental disability. They reported that 41% of those who were living with family members were satisfied with the arrangement whereas 5901b would have preferred another housing situation. The AMI-CC study also found that those who wished to leave the family home were unable to do so because they either could not find, or could not afford, suitable alternatives. Considering the movement toward increased independence in living situations, respect for client preferences, and the reality-based concerns of caretaking parents as they grow older and die, i i imperative, when developinghousing_plans, to include the needs -- - 15 - Mental Health Commission Housing Report June,1994 and anticipated needs — of the adult clients who are currentlyli with the ren s. PERMANENT INDEPENDENT LIVING SITUATIONS Independent living situations are preferred by a substantial majority of all mental health clients, by as much as 70-90%, according to local surveys*journal articles," and anecdotal input from consumers. Based on the living situation categories and data in the system's computer base, we have identified 2,286 clients (32% of the total) who are living in a variety of permanent, independent situations, including: 1,448 persons who live alone in,a house or apartment, 701 who live with unrelated adults, 39 who live in a Single Room Occupancy hotel (SRO), and 98 who live in unlicensed "group homes". We do not know from the data how many of these persons are living in Supported Independent Living (SEL) situations nor how many of the units are subsidized, but we know there were no more than 222-227 ** independenA living situations in which aome suI212ort(i.e., subsidy or housing-related service) was pEovidgd. It is therefore apparent that some 90% of the mental health consumers who are living indeDendently are living in regular, unsubsidized, widely- scattered community housing; they are receiving no housing-related support from the mental health system although they may be receiving substantial support from members of their families who live in the community. Surveys of consumers residing in Board and Care Homes and in Institutes for Mental Disease(IMDs),conducted by Mental Health Consumer Concerns of Contra Costa County, in January,1989. **Survey results reported by Jonathan Keck and Paul J.Carling,Journal of Social Rehabilitation, April, 1990. ***As will be seen later, the independent living situations which provided some degree of support during the past year included: 47beds with both subsidies and housing supports in SELs; 25-30 beds with subsidies but no housing-related supports in SRO's;and approximately 150 units, with Section 8 subsidies and no-housing related supports. - 16 - Mental Health Commission Housing Report-June,1994 The AMI survey of 102 families reaffirmed this finding and included a further breakdown of the living situations and preferences of their disabled relatives, as perceived by the family. The following table shows the findings with reference to persons in independent living situations. AMI-CCCSTUDY OF HOUSING 5M TATTONS AND PREFERENCES, Independent Rousing Situation Current Number Preferring Number (Multiple 4's permitted) Supported Independeni Living 3 41 Own apartment 21 29 Shared apartment 3 18 Mobile home 3 3 Room in private home 7 6 Single room 4 2 Unlicensed home 6 1 Approximately half of the clients living independently are living in apartments. Given the impoverished status of most clients and the high rents being charged for apartments in Contra Costa County, it is very likely that most of their apartments are small, run-down, located in poor neighborhoods, and lacking in amenities. Nonetheless, apartments are very highly preferred over rooms in other people's homes, and a room in an unlicensed group home is the least preferred. While this fording is based on a local survey of families, rather than consumers, it corresponds with a national study of consumer preferences which found that 43% of consumers living in their own apartments were very satisfied with their situations compared with only 17% of those living in group homes (Levstek and Bond). According to the AMI-CC study, Supported Independent Living was over-whelmingly favored by families of persons with a mental disability, and this is also consistent with the national trend. Furthermore, it can be anticipated that this form of housing will show a progressively increasing dominance over time, as clients and families have more opportunities to be exposed to the concept and to experience the benefits of Supported Independent Living. IF we are truly interested in developing a client-driven system, one which is responsive to the desires, as well as the needs, of mental health consumers, and IF we intend to follow the State's Master Plan, then the development of Sup2med Independent Housing will have to assumeVriority,status. - 17 - Mental Health Commission Housing Report-June,1994 SPECIAL USER "HOUSING" Special User Housing was defined in the 1989 Special User Housing Plan as: "Housing specifically designed, supported and maintained to provide community residences for members of a particular group of individuals who share a common characteristic, disability or special need. And who may... require specialized support services in order to maintain that residence." As used here, the term Special User Housing has been broadened to encompass all of the residential settings/programs which have a governmental connection (i.e., which receive funds from the county or other governmental agency and/or which are licensed by a government agency)* and which are specially targeted for persons with mental disabilities, including: (a) Permanent housing for persons with mental disabilities, such as Supported Independent Living (SII.) units and Single Room Occupancy (SRO) hotels; (b) Those which are more appropriately characterized as long- term supervised group settings (i.e., Board and Care homes); (c) Residentially-based treatment programs, and (d) Institutions, including Institutes for Mental Disease (IMDs) and State Hospitals. Many of the above programs, while not strictly "housing" are relevant to our analysis since they are included in the system's computerized listing of living situations and may, in fact, be the person's only "home". 785 persons (approximately 11% of the mental health system's clients) are living in some form of Special User "Housing", as described above.** ` Non-licensed room and board and other strictly private facilities are not included. ** The "system's clients", as the term is used here,includes all of the clients who received billable mental health services from public or publicly- supported agencies during the year from February 28, 1993 to March 1. 1994. - 19 - Mental Health Commission Housing Report-June,1994 The distribution of slots which were available in each of the Special User "Housing" categories, during the past year, is displayed in the first column of the table below. The second column shows the proportion of clients who lived in each "housing" category during the one year period. DISTRIBUTION OF SPECIAL USER "HOUSING" SLOTS Special User "Housing" Categories Number Percent of Special of Beds User Clients in Each (93 - 94) Category Board and Care Homes 231 58% Supported Independent Living 47 5% Special-User SRO's 25-30 4% Transitional Housing (3 - 24 22 2% months) Community Based Residential Treatment Nierika (Crisis) House - 30 day 9 11% limit Nevin (Transitional) House 12 4% Institutes for Mental Disease 82 10% State Hospitals 39 6% TOTALS 497-472 100% of the 785 persons in Special User "Housing" [Information was drawn from the Mental Health Division's computerized data for the year from February 28,1993 -March 1,1994. Some extrapolation was required because the computerized categories do not exactly correspond with the categories being used in this report. It should also be noted that some of the short-term programs(notably Nierika,the Crisis Residential program which has a 30 day limit per stay, and several transitional programs)serve many more persons than their slots would suggest,because multiple persons fill a single slot in the course of a year]. - 20 - Mental Health Commission Housing Report-June,1994 A comparison of the current picture of community-based programs with that shown in the Special User Housing Plan of 1988 reveals little net gain, despite the concerns expressed at that time and substantial growth in the County's population over the past 5-6 years. Specifically: o 14 Supported Independent Living (SIL) slots were developed in response to the Plan's recommendations; 6 of these are now in the process of being restructured as a 10-bed residential treatment program; and 25 are being added -- so, for next year, the net gain in the SII. category will be 33 slots; while the number of slots in residential treatment will be increased by 10. o 25-30 slots in an Single Room Occupancy (SRO) hotel were made available to persons with mental disabilities; and o A treatment facility for dual diagnosis clients was changed to a transitional residential treatment program. o Funding for the prior "SB 155" program, which regulated the augmentation of Board and Care Homes, has been discontinued, and the homes which were certified to receive a funding augmentation (known as a "patch") in 1988 have not received any augmentation in recent years. During the past few months, ten augmented care beds in Board and Care homes have been reinstated, and an additional 20- 30 are planned. In the following sections, we will examine all of the types of Special User "Housing" within Contra Costa County in greater depth, including for each: a definition, an inventory of the resources, the number of Contra Costans who can be served, a discussion of the issues, and our recommendations for improvement. - 21 - Mental Health Commission Housing Report-June,1994 A. LICENSED BOARD AND CARE HOMES DEFINITION: Board and Care Homes are licensed by the State to provide room and board and 24-hour care and supervision of residents, and to store medications and monitor their usage. Board and Care Homes are designated either as Adult Residences, for . persons from 18 through 59, or Elderly Residences, for persons 60 and over. Licenses specify whether Board and Care Homes may serve persons who are not ambulatory, but there is no specific licensure by tape of disability; ie, the operator may specify a preference for mentally disabled, developmentally disabled or other disability category or the operator may serve persons from various categories. Not all Board and Care providers accept persons with mental disability and even those who do sometimes "pick and choose" their residents. Elderly Residences are permitted to fill 25% of their beds with residents under the age of 60, but only a small portion actually do so. PROGRAM & REGION CAPACITY COMMENTS PROVIDER 2 Adult Board and Care East 22 beds 11 beds each,one owner Homes in East County 9 Adult Board and Care Central 65 beds Some prefer develop- Homes in Central mentally disabled but County will accept a few mentally disabled residents 29 Adult Board and Care West 152 beds Some prefer develop- Homes in West County mentally disabled but will accept a few mentally disabled residents TOTALS: 40 homes 239 beds NOT ALL of the beds are for mentally disabled DISCUSSION: Board and Care Homes constitute the predominant form of Special User "Housing", providing the only environment in which long-term 24-hour-a-day supervised residential care is - 22 - Mental Health Commission Housing Report-June,1,994 provided in a community setting. As such, it is frequently the only allowable option for placement of people leaving State Hospitals or Institutes for Mental Disease (IMDs). During the past year, a total of 538 mental health clients' reportedly lived in Board and Care Homes, 377 in the 33 homes with 6 beds or less and 161 in homes which are licensed to serve 7 or more clients. Small homes, those serving 6 residents are less, generally are operated by one person, or a couple, who live on the premises. The large homes, 7 in our County, range from 7 to 14 residents at a single site. SPECIAL ISSUES: A number of concerns have been identified, as follows: (1) Most, but not all, Board and Care operators accept the specified SSI rate, an amount which takes virtually all of the client's income. Despite this hardship for clients, however, the net income to operators of small Board and Care homes is generally very low. In a county like Contra Costa, where housing costs are high, this produces a difficult situation in which: (a) It has been difficult to maintain an adequate supply of providers. In East County, there has been a decline from 12 homes and 42 beds in 1988-89 to 2 homes and 22 beds today. Central and West County counts are similar to those reported in 1988-89** , but the numbers fluctuate and not all of the beds in our count are specifically ear-marked for the mentally disabled. 'The number of residents exceeds the number of beds because: (a)a single slot may be filled by a number of different persons at different times, as residents move from one living situation to another, and(b)those reporting the data may not always differentiate between licensed Board and Care and unlicensed group homes, causing some inflation in the number reportedly living in Board and Care homes. **The Special User Housing report of 1989 reported that there were 213 Board and Care beds designated for mentally disabled persons. Our current figure includes some homes that serve varied populations and some that will not accept the SSI rate, we don't have the precise numbers but it appears that a fully adjusted current total would closely approximate the 1989 figure. - 23 - Mental Health Commission Housing Report-June,1994 (b) Most small Board and Care Homes are located in multi- problem neighborhoods, generally with poor transportation and inadequate community facilities; (c) Small Board and Care Homes are frequently physically uncongenial, with two persons generally required to share a small room, no private bathroom or other provisions for privacy, inadequate space for socializing, etc.; (d) There is no way for a single provider of a small Board and Care home to provide 24 hour supervision without some assistance. (e) When a single person provider leaves the premises, he/she will often lock client(s) out of the home during his/her absence. This practice is illegal and grounds for license revocation; nonetheless, there is substantial anecdotal evidence that it does occur. A Mental Health Consumer Concerns survey of 67 Board and Care residents (January, 1989)reported that clients said they were "quite often" required to leave the home for the day. This, along with.an occasional designation of the home as a "guest house" and the fact that the owners often live on the premises, contributes to the residents' feeling that it is not reallyIt leir "home". (2) In both large and small Board and Care homes, the services provided, apart from medication monitoring, are generally minimal unless a special augmentation is provided; (3) Board and Care homes serving 7 or more residents generally employ staffs, increasing their potential for offering on-site programs and activities and decreasing operator burnout. However, if their sole source of income is the SSI reimbursement rate, their funds will be limited and their staff members are likely to be low-paid, sometimes poorly qualified, and, frequently, non-English speaking; (4) SB 155, which was available to provide augmented funding (a patch) for Board and Care homes in the past, has not been available since Realignment went into effect. Without a patch, Board and Care Homes must make do with the meager income derived from SSI, hold - 24 - Mental Health Commission Housing Report-June,1994 out for private-pay clients at higher rates, switch to serving developmentally disabled clients (who do provide a patch of at least $220/month), or discontinue their operation. The Division has begun to address this issue. One large (10 bed) Board and Care Home in our County -- the Lee Care Home in San Ramon -- is receiving additional funding from the Mental Health Division to provide augmented care for 10 persons. Such augmented care includes: a weekly "Health and Medication Group" for residents; an on-site psychiatrist four hours a month to provide treatment, monitor medications, and educate staff and residents about psychotropic medications; a weekly "Personal Milestone" group for residents, and a weekly group focused on activities of daily living. In addition, structured physical activities (walking, exercises, athletic games) occur daily and outings.planned by the residents occur on a monthly basis. Proposals from Board and Care Homes willing to provide augmented services are being solicited, and it is anticipated that the number of augmented beds contracted in Board and Care homes will be increased by 20-30 in FY 94-95. RECOMMENDATIONS: (1) Explore the possibility of providing monetary incentives to Board and Care home operators in order to stimulate them to encourage and facilitate their residents' moving to independent living situations. At present, the operator has a disincentive to accomplish this, since he/she will lose the resident's rent and will have to exchange a known resident for an unknown --possibly more difficult -- resident when the current resident moves on; (2) Provide a monetary patch in order to upgrade services in Board and Care Homes, particularly in the larger homes which have the most potential. As noted earlier, this is being done or planned in a few homes at the present time. Since Board and Care Homes are heavily used, particularly for persons leaving institutions, we would like to see a substantial expansion of augmented beds. The possibility of enlisting non-profits in the development of high- quality Board and Care homes has also been suggested. (3) Consider developing some form of non-monetary assistance (in lieu of a patch) in order to upgrade services in Board and Care Homes - 25 - Mental Health Commission Housing Report-June,1994 which do not receive augmented funding. Such support might be particularly helpful in small Board and Care homes, where single person operators are more subject to burnout and more prone to shut residents out of the home when they leave the premises. (a) One strategy might be for the mental health system to assign personnel (without cost to the operator) to provide: respite care for the Board and Care operator, on-site instruction for clients in household maintenance and cooking, client group meetings and activities, or other targeted supports to the Board and Care provider and/or the clients in the Home; and (b) Another might be a cluster strategy, whereby a group of operators are connected to a core program which offers joint purchasing, medication education, and a variety of other services supportive of the operator as well as the clients. In addition to upgrading services, the proposed funding augmentation and/or the provision of staff assistance might facilitate recruitment of Board and Care operators in all sections of the County. (4) Develop standards and a more active monitoring system, including regular surveys of client satisfaction, so that: . (a) operators know that their programs are being evaluated, (b) placement of clients in poor situations can be avoided, and (c) the best programs and/or potential models can be identified. B. SUPPORTED INDEPENDENT LIVING (SIL) DEFINITION: Special-user Supported Independent Living (SIL) is one of the terms used to describe independent living in specially- targeted apartments or houses. Other terms which are sometimes used for S]Ls include: Clustered Apartments, Member-supportive Communities, Service-enriched Housing, Targeted Housing, and Congregate- Supported Housing. There are two forms of support provided in SILs: first, there is'a rental subsidy which is linked to the property (rather than to the tenant as it is under Section 8), and, second, there is supportive nearby, or available, to provide assistance with issues relating to - 26 - Mental Health Commission Housing Report-June,1994 living in an independent or shared unit within,a larger community. Directly linked to the housing program, the support staff generally involves clients in providing peer support and making program. decisions related to their housing community. The current status of County-supported SIL programs is shown below: PROGRAM & REGION CAPACITY COMMENTS PROVIDER Clayton Way,HIP Central 6_11,adr_ One six-bedroom house [THIS PROGRAM IS BEING for homeless adults;rent CHANGED to residential at 30%of adjusted income treatment--see Discussion] I Santa Fe, HIP East 8 beds Two two-bedroom units and one four-bedroom unit for homeless adults; rent is 30%of tenant's adjusted*income. Kirker Court, HIP Central 25 beds 13 one-bedroom and 6 [NEW--ANTICIPATED two-bedroom for OPENING WELL BE THE adults/families; BEGINNING OF FY 94-95] rent will be 30%of ten- ant's adjusted income. Phoenix Apts.,Phoenix Central 11 beds Eleven one-bedroom units,for individuals or couples Rubicon Homes,Rubicon West 10 beds Rent is 30%of tenant's adjusted income Virginia St.,Rubicon West 12 beds Rent is 30%of income 9th St. Apts.,Rubicon West 4 beds Mentally-disabled homeless TOTAL 70 beds DISCUSSION: The HIP programs were initiated in response to the Special User Plans developed in 1988 and 1989. This resulted in 14 additional Supported Independent(SIL) beds being available to Contra Costars during the past several years. With the addition of the Kirker Pass units, scheduled to be open in July, 1994, the total SEL capacity would have reached 76. However, the Clayton units are being converted from Supported Independent Living (SIL) units to Residential Treatment units, so there will be an off-setting loss of 6 SIL beds. The total number of SEL beds will be 70 when all of the changes are complete. While this progress is welcome, the number is unacceptably small, given the - 27 - Mental Health Commission Housing Report-June,1994 marked preference for Supported Independent Housing and the large number of clients who are currently living in independent housing without any support. RECOMMENDATIONS: (1) Explore all of the possibilities for increasing the number of Supported Independent Living (SIL) units/beds in our County, including: (a) Identifying and/or encouraging the development of Special-User Housing Development Corporations with a commitment to building affordable housing units, including units targeted for persons with mental disabilities; (b) Supporting the efforts of identified Housing Development Corporations to secure community acceptance and project funding; (c) Collaborating in County efforts to identify and secure funding for any subsidized housing programs which may have applicability to persons with mental disabilities; and (d) Endeavoring to increase the availability of Section 8 vouchers and certificates targeted for the mentally disabled; (2) Work with appropriate County Departments to ensure that the Master Plan's Housing Elements adequately provide for Special User Housing for all lands under the County's jurisdiction; (3) Continue active collaboration with the County's Housing Authority, housing developers, and cities to increase the supply of safe affordable housing; and (4) Fund services to provide needed supports, to the fullest extent possible, to all persons who are living independently and who require assistance in order to maintain their independent living situations. - 28 - Mental Health Commission Housing Report-June,1994 C. SINGLE ROOM OCCUPANCY (SRO) DEFINITION: SRO's are simply rooms for individuals to rent. They may or may not have a dining hall, common kitchen and community room. Generales they are converted hotels/motels that provide private rooms with baths. or shared baths, to clients who have difficulty living with other people in shared housing or who prefer to live alone. PROGRAM&PROVIDER REGION CAPACITY COMMENTS River House Central 75 rooms-- Available to elderly total for all and/or disabled adults, (HIP owns the property populations with no planned ratios; and it is managed by preference is given to Eden Housing's 25-30 rooms homeless. Management Service) (33%)were Rent is based on room occupied by size; all have bathrooms mentally and kitchenettes,with disabled in one full kitchen on each January, '94 1 floor. DISCUSSION: Many of the mentally disabled residents in River House were formerly homeless persons, and some of these individuals have found it very difficult to conform to the behavior required for living in a building with a lot of other people, resulting in their being evicted. It is strongly felt that these difficulties could have been avoided if adequate support, as well as opportunities for participation in structured activities, were provided. RECOMMENDATION: In cooperation with a consumer organization, arrange to provide all needed support and activities to enable residents in SRO's to successfully maintain their residence in these living situations and to access more fully independent living situations when the person is ready for such a move. Note: As this report is being prepared, we understand that the County is actively developing a consumer-staffed support program at River House, as well as at the Santa Fe and Kirker Court Apartments. This is a much-needed and most welcome development! - 29 - Mental Health Commission Housing Report-June,1994 D. TRANSITIONAL (TIME-LIMITED) HOUSING DEFINITION: Transitional programs generally provide for a length of stay ranging from three to twenty-four months, based upon the client's needs and desires. Except for their temporary nature, they are similar to Supported Independent Living programs which provide both housing and staff support. They are primarily designed to prepare residents for independent living in the community. PROGRAM& PROVIDER REGION CAPACITY COMMENTS Pine House,Phoenix West 5 beds Coed;can serve people from all regions of count Maple House,Phoenix Central 5 beds Coed;can serve people from all regions of count San Joaquin I,Rubicon West 3 units/ 9 beds TOTAL 19 beds DISCUSSION: These programs provide a useful transition for mentally disabled persons being discharged from more restrictive settings and their function is particularly valuable during this period when every effort is being made to bring people from State Hospitals and IMDs into community housing. Additional transitional housing units are needed to serve a population the size of Contra Costa's, particularly during a time of change. RECOMMENDATION: Retain, support and, if possible, expand these programs. E. RESIDENTIAL TREATMENT DEFINITION: Residential Treatment Services provide a structured program, available day and night, seven days a week in a non- institutional residential setting. Individuals are supported in their efforts to restore, maintain and apply interpersonal and independent living skills and to access community support systems. This is a time-limited treatment service for individuals who would be at risk of hospitalization or other institutional placement if they were not in a residential treatment program. No particular time - 30 - Mental Health Commission Housing Report-June,1994 limit is specified in the contract for Nevin House, but the average length of stay has been approximately three months during this past year. Since it is considered to be a TREATMENT program, rather than a housing program, it is billable under MediCal. PROGRAM & PROVIDER REGION CAPACITY COMMENTS Nevin House, Phoenix Located 12 beds Serves men and in West women from the entire count Clayton House (NEW)* Central 10 beds TOTAL 22 beds DISCUSSION: As noted earlier, *Clayton House, which had been used as a Supported Independent Living (SII.) program for homeless persons, is being converted to a Residential Treatment program for 10 persons. With the existing Nevin House and the re-structured Clayton House, the county will have 22 beds for Transitional Residential Treatment. While the loss of supported independent housing is always regrettable, this virtual doubling of our county's transitional residential treatment capability is a necessary component in the effort to reduce reliance upon costly institutional and hospital services. RECOMMENDATIONS: (1) Support the County's effort to utilize Clayton Way as a residential treatment program for clients at risk of hospitalization or other institutional placement. (2) Provide active encouragement and support to clients who choose to move out of residential treatment to permanent independent living situations. If they already have permanent housing, aid them in retaining their housing during the time-limited periods when residential treatment is necessary. - 31 - Mental Health Commission Housing Report-June,1994 F. CRISIS RESIDENTIAL TREATMENT DEFINITION: Crisis Residential Treatment is an alternative to hospitalization for individuals who are experiencing an acute psychiatric episode or crisis and who do not present medical complications requiring nursing care. It offers a structured program, with services available day and night, seven days a week. Stays are limited to a maximum of 30 days per episode. The time limitation on stays, and the consequent turnover, made it possible to serve the 98 different people who were reportedly served in this 9- bed facility during the past year. This is a TREATMENT program, billable under MediCal. PROGRAM & PROVIDER REGION I'CAPACITYT COMMENTS Nierika House, Phoenix County- 9 beds For men and wide I I women DISCUSSION: This small 9-bed facility is the only crisis residential treatment program for adults with mental disabilities in the County; and its services are essential to our community. In addition to providing a viable alternative to hospitalization, it provides a necessary respite for both the client and the caregiver during crisis periods. However, it would be inappropriate to consider Nierika a "housing" program, since it does not provide a permanent place to live. ISSUES: While the program can theoretically serve 150 people for 30-day stays, it is much too small to accommodate-the numbers of people who are in need of this service as an alternative to costly hospitalization during periods of acute crisis. RECONtIVIENDATIONS: (1) Contract for the additional three beds for which Nierika is licensed. This will bring the total number of crisis beds available in our county,to 12, and it will make it more possible to provide access to residential crisis beds whenever they are needed. (2) Do everything possible to ensure that clients maintain their own, permanent housing while they are in the crisis residential treatment - 32 - Mental Health Commission Housing Report-June,1994 program or help them to access such housing if they don't already have it. G. STATE HOSPITALS AND INSTITUTES FOR MEENTAL DISEASE (IMD's) DEFINITIONS: State Hospitals are state-operated facilities which provide food, shelter, medical care, mental health treatment and other basic services in locked, institutional settings,removed from the community. As utilization of State Hospitals has declined, virtually the only persons remaining in State Hospitals are those who are very severely disabled (frequently with physical as well as mental disabilities), self-destructive and/or violent. Institutes for Mental Disease (IMD's) are the psychiatric equivalent of Skilled Nursing Facilities (SNP's). They are institutional, locked facilities, generally ranging in size from 64 to 199 beds. Mm's are specially licensed and accredited as psychiatric non-acute facilities for adults with "mental diseases which require treatment". The following table shows the number of institutional beds which are being contracted/purchased by Contra Costa County during the current fiscal year: PROGRAM&PROVIDER REGION CAPACITY COMMENTS Napa State Hospital County- 39 beds for Contracted beds for FY'94 wide Contra Costa Crestwood IMD's County- 52 beds San Jose 30 wide Vallejo 17 Modesto 2 Stockton 3 Westwood IMD County- 20 wide Telecare,Alameda Co. County- 10 Gladman 2 wide Villa Fairmont 4 Garfield 4 SUB TOTALS: 39 Hospital 82 IMD's INSTITUTIONAL 121 TOTAL TOTAL: - 33 - Mental Health.Commission Housing Report-June, 1994 DISCUSSION: There is general agreement that it is desirable to provide clients with community-based permanent housing in non- institutional settings whenever possible, and our county has made significant progress in reducing our reliance on institutional care. Our use of Napa has been reduced by nearly half in the past year, from 72 to 39 beds. The total number of IMD beds was increased by 10, to help serve the clients returning from the State Hospital. While the institutional census has declined substantially, there were still approximately 100 clients housed in 11VIDs in the course of the year. Similar numbers will most likely be served in these facilities for the foreseeable future, so that concerns about the quality of care must be addressed. Particular concern has been expressed about the adequacy of space and programming and the qualifications and English-speaking capability of aides and other low-paid, entry-level staff within the IMD's. RECOMMENDATIONS: (1) Endeavor to improve the quality of IMD's, as recommended in the ad hoc Plan of the Mental Health Commission; (2) Invite input from families and clients about available/desired programming at IMI)s to assist in developing IMD performance contracts; (3) Continue to develop the housing alternatives and supports which are needed to maintain persons with severe disabilities in the community, as recommended throughout this housing report, and (4) Continue to strive, as expeditiously as possible, to move clients from IMDs into less restrictive types of care - 34 - Mental Health Commission Housing Report-June,1994, SPECIAL NOTE ON THE COUNTY JAIL: Before leaving the discussion of institutional care, it is important to mention that there is another institution in our county -- the county jail -- which, unfortunately, "houses" a substantial number of persons with mental disabilities. There are 50 beds in a special psychiatric wing, known as the M-Module, in the Martinez Detention Facility. These 50 beds are all-too-often filled with people whose mental disability and lack of resources have combined to produce behaviors which result in their incarceration. The Mental Health Division provides limited mental health services at the jail, although mental health services provided in jails are not reimbursable by Medi-Cal and the Sheriff s Department does not contribute to the cost of these services. The incarceration of persons with mental disabilities, who require treatment and not punishment, is a very serious issue, but it is beyond the scope of this housing report. It is hoped that future studies and reports will give this important subject the attention which it most certainly warrants. - 35 - Mental Health Commission Housing Report-June,1994 HOMELESSNESS Deinstitutionalization and the.lack of adequate community resources to house persons with mental disabilities has contributed significantly to the growing problem of homelessness within the past decade. It has generally been stated that over 30% of homeless persons have a mental disability. Shelter, Inc., the County's operator of generic homeless shelters estimated that there were 15,000 homeless persons in Contra Costa in 1990. If the estimates and projections are correct, there may be as many as 5,000 homeless persons with some degree of mental disability and/or dual diagnosis in our county in any given year. Even if we were to use the most conservative estimate of homelessness (6,000 total for the County), we would still have an estimated 2,000 homeless in need of mental health services in Contra Costa County. Data from the Mental Health computer system identified 374 mental health clients as homeless during the year from February 28, 1993, through March 31, 1994. Of the 374 homeless persons who were receiving billable services from the mental health system, 112 (30% ) were receiving ongoing treatment at County clinics; 217 (58%) were seen by Mental Health Crisis Services; and 45 (12%) spent time in Merrithew's psychiatric wards. This pattern is consistent with national findings that homeless persons with mental disabilities rarely receive ongoing mental health treatment and are frequently seen by Crisis Services. Further, contrasting the several hundred homeless persons served by mental health with the estimated several thousand who are homeless and mentally disabled, it seems apparent that mental health services to the mentally disabled homeless consist primarily of the time- limited help which they receive at multi-purpose centers and at the generic and special user shelters described below. Delays in the provision of adequate, long-term mental health treatment generally costs more in the long run, since homeless persons who are untreated often end up in crisis services and acute psychiatric hospitals. While this population is frequently resistant to seeking mental health services, they are accessible when they are in contact with shelters and Multi-service Centers. Therefore, - 36 - Mental Health Commission Housing Report June,IGA 91— expanding mental health treatment services at the shelters and following discharge can provide an opportune means of reaching and helping to stabilize hard-to-reach people who are homeless. DEFINITION OF HOMELESS SHELTERS: The provision, generally in group settings, of emergency and transitional housing for persons who are homeless. - Emergenry housing is defined as housing where the length of stay is limited to NO MORE THAN THREE MONTHS. Transitional housing programs generally permit residents to stay from THREE TO TWENTY-FOUR MONTHS. PROGRAM & REGION CAPACITY COMMENTS PROVIDER Ease CQunty Shelter for County- 20 beds Emergency shelter for people with mental wide homelQss persons who disabilities, Phoenix have a mental (SPECIALIZED,supported disability; stays limited by Mental Health) to 30 days; served 325 peop-e last year Contra Costa County County- 60 beds Emergency shelter for Shelter in North_Canoa wide (for all; all persons who are Shelter Inc. number for homeless- including (GENERIC,supported by those with mental CCC Housing Authority) MI isn't disabilities,dual- specified) diagnoses and HIV Contra Costa County County- 56 beds Emergency shelter for Shelter in NDXlh wide (for all; all persons who are Richmond,Shelter Inc. number for homCless.including (generic,supported by those with mental ccr, MI isn't disabilities,dual- Housing Authority) specified) diagnoses and HIV Mt. View,Shelter Inc. Central 12 beds Transitional shelter, (GENERIC,supported by dormitory style,for CCC Housing Authority) homeless women;may include mentally disabled 5=Damiano, Shelter Inc. Central Cottage for Transitional shelter for (GENERIC, supported by two women empluygd homeless CCC Housing Authority) women;may include mentallY disabled TOTAL 150 NOT ALL for persons with mental disabilities - 37 - Mental Health Commission Housing Report-June, 1994 Additional emergency shelter beds in Contra Costa County are designated for the following population groupings: 200 beds for persons who are homeless(most of these are at the Richmond Rescue Mission) 100 beds for substance abusers, 24 beds for battered women and their children, Motel vouchers for homeless persons/persons at risk of homelessness (generally funded by FEMA,the Federal Emergency Management Agency, and limited to 3 nights), 18 beds for persons with HN/AIDS These shelters and motel vouchers can be utilized by persons with mental disabilities if they meet the programs' other criteria. It should also be noted that there are three Multi-purpose Centers, one in each region of the county, which serve people with mental disabilities who are homeless or at risk of becoming homeless. Funded,by Contra Costa County Mental Health and operated by Phoenix, Inc., these Centers provide: assistance in securing financial, medical and housing resources; showers and laundry facilities; counseling; referrals to the East County Shelter; and other services. Approximately 900 people received services at the Multi-purpose Centers last year. County Mental Health has assigned a case manager to each of the Centers for six hours per site per week. DISCUSSION: The demand for housing assistance for homeless persons greatly exceeds the capacity of the shelter programs. The emergency shelter programs which serve persons with mental disabilities (East County,North Concord and North Richmond) tend to serve the same persons over and over--a revolving door phenomenon-- because: o The length of stay at the East County shelter is limited to 30 days, too short a time to develop and implement a long-range plan o There are insufficient mental health services* available to residents of the Shelter, Inc. programs which are operated by the County Housing Authority. County Mental Health provides one mental health professional for all of the Shelter, Inc. programs, an *The need for substance abuse treatment and treatment for those with dual diagnoses is equally compelling. While these subjects are beyond the scope of the present report, we recognize that effectively addressing the problems of homelessness will require collaboration with the Departments and agencies who are involved with subtance abuse issues. - 38 - t Mental Health Commission Housing Report-June,.1994 allocation of 6 hours of mental health services per week per site. At the Concord shelter, there are a group of professionals who provide mental health services on a volunteer basis, but there is no similar volunteer program available in Richmond; and o There is insufficient funding to provide follow-up services after persons leave any of the shelter programs. RECOMMENDATIONS: (1) Work to_develop more early intervention programs which could help to prevent homelessness, including, for example: - Identifying persons at risk of homelessness, (e.g., people who have been served with eviction notices) and providing them supportive services before they lose their homes; - Ensuring that people who have housing do not lose that housing when they are temporarily hospitalized or in a treatment program;and c - Helping mentally-disabled people who are about to be discharged from hospitals, treatment programs,jails, and other temporary "residences" arrange permanent housing prior to their release; (2) Advocate with the county for more shelters; (3) Increase the maximum length of stay permitted in the East County Shelter; (4) Increase the mental health services which are provided: (a) at the generic homeless shelters that serve substantial numbers of persons with mental disabilities and (b) at the Multi-service Centers; (5) Increase linkages between shelters and case managers to ensure more adequate provision of critically-needed follow-up services; and (6) Involve clients in planning and preparing for services and housing alternatives which are acceptable to them since people who are homeless "may have had many negatives experiences in the past with the mental health system, or may have simply become so rootless as to have enormous.difficulty in staying within a particular housing setting". (Carling, Paul J., 1993) - 39 - i' ► Mental Health Commission Housing Report-June,1994 CONCLUSION The approach presented in the foregoing pages reflects the Mental Health Commission's commitment to developing and implementing a comprehensive array of community-based housing options, responsive to the needs and desires of the heterogeneous population served by the mental health system It reflects our belief that we must retain, and improve, a variety of special user housing until both the clients and the system are fully ready to move into supported independent housing. It reaffirms the commitment of both the Commission and the Division to a client-driven system, one which respects the desire of clients to have what most other people have and to live the very best lives tiat they can. An extensive body of literature, as well as data from our state and county, has shown that most clients want to live in permanent, independent, affordable homes in ordinary neighborhoods, alone or . with roommates of their own choice.* That literature has also shown that they can do so successfully, even if their disabilities are severe, PROVIDED THAT ALL NEEDED SUPPORTS ARE AVAELABLE. Needed support may mean help in finding a place, applying for a rental subsidy, and arranging for utilities and furniture; it may involve being available for crisis intervention or medication monitoring; it may include training in cooking, money management, and other independent living activities; it may involve helping the client to access other supports and resources within the community; or it may involve helping a client prepare for, secure and retain employment.* In order.to truly stabilize permanent independent living situations, these supports must be available, preferably on-site at the client's *The literature has also emphasized the importance which consumers place upon having real jobs and social interactions within the community. Both of these are of utmost importance, and,as pointed out in previous sections,the income to be derived from paid employment can be a key element in one's ability to secure decent housing. But,like independent housing,regular employment requires the provision of adequate training and supports. We believe that this is a vital aspect of community living for persons with mental disabilities, and we hope that it will be addressed in subsequent planning efforts. - 40 - w Mental Health Commission Housing Report-Jun,,LwN :. residence, FOR AS LONG AS THEY ARE NEEDED. Since staff members (either County employees or contracted staff) are the ones who provide these supportsf there would have to be a commitment to fund additional positions, or reassign staff, to provide.the necessary supportive services. By and large, neither permanent, affordable housing nor the above- described supportive services are now available to the majority of clients in the mental health system in Contra Costa(or elsewhere in the country). Placing major emphasis on the development of housing and the provision of requisite supportive services will require profound changes in the mental health system. As stated in the Psychosocial Rehabilitation Journal devoted to this subject(April, 1990): "In order to implement supported housing on a broad scale, most mental health systems and agencies will have to change their mission and values, as well as the way they relate to clients and communities. Such fundamental changes must occur if the right to a home and life in the community is to move out of the realm of rhetoric and become a reality in the lives of people who experience psychiatric disabilities".` Key to this process is the commitment on the part of the Mental Health Division to assign priority status to allocating, or contracting for, staff to provide the supportive services which are required to maintain people in independent living situations. It is essential that our county and city leaders take the lead in seeing that more affordable units are built throughout our county and that more of these units are made available to people with mental disabilities. It is critical that any savings which derive from our system's reduction in State Hospital and other institutional usage be retained within the mental health system for application to urgent housing and supportive service needs. And, finally, the Mental Health Commission and other advocates for persons with mental disabilities must continue to promote these concepts and actively work to enlist communities in our efforts. If we all work together, we CAN move from rhetoric to reality! 'Ridgway and Zipple,op. cit - 41 -